This week, we, the families who lost loved ones in long term care facilities finally have hope for the truth to be told regarding Governor Andrew Cuomo’s policies admitting and re-admitting folks who were covid-19 positive to nursing homes. Finally. In a letter dated August 26, 2020 the Department of…
The Cost Of Living
Yesterday a dear FB friend asked me if I had taken my Facebook page, “Pug You MS” down. “Yes, I really don’t want to talk about ms anymore”, I replied. And boy did I mean it. I hope I didn’t come across abrupt I thought to myself, I just can’t stand…
Brokenhearted Sheep
Every day I find myself looking at my phone and wishing I could see my brother’s number light up just one more time. I still cry wondering how he died. Was he able to breathe? I hope he knew I loved him. My heart still breaks that he like all…
Urgi-Care Visit During COVID-19 (Vaccinated With Multiple Sclerosis)
In ordinary times I avoid hospitals and Doctor’s offices as much as possible. It’s no secret that hospitals are the worst place to be. I remember my Doctor telling me that after surgery years ago. “This is the worst place to be”. Right before the COVID-19 crisis first began in…
Alone Together
Friends and family are dying People everywhere are crying When will it end Is the government lying Some wear a mask Some want to fight Afraid of losing their rights Can’t buy a cure Can’t buy a hug Not even a mask Staying healthy is a task Dreams on hold …
The Essential Supermarket Employee: COVID-19
Here in New York City where everyone is still under a “shelter in place” order and everything is still closed except for the necessities like supermarkets, I wanted to talk to someone who has been working the front lines albeit in a different way, every single day: my nephew Jim. Where do you work?…
COVID-19 In Nursing Homes: My Brother
As I write this over 10,000 long term care facility residents have passed away from COVID-19 in the U.S.A. (source ABC news).In N.Y.S. well over 3000 have passed away from COVID-19. My brother was one of them. Each day I tune in to our Governor’s press conference to see if…
Dear Mom It’s Me Karen: End Stage Alzheimer’s Disease
Dear Mom,It’s me Karen but you already know that. You may have forgotten a lot but you know me and I’m so very grateful for that. So many people who have Alzheimer’s Disease don’t recognize or remember their loved ones. I know you don’t know how sick you are or…
Staying Healthy When Visiting Hospitals
Having spent a lot of time visiting my Mom in health care facilities this past month and no flu shot, I’m always trying my best to avoid catching something. Let’s face it, even the cleanest facilities are one big ventilated petri dish. I choose to wear a mask because there is…
My Dear Old Dog
My dear old dog You bring me comfort and peace Your loyalty and love never cease My faithful friend Time & again you’ve helped me mend Never leaving my side Wagging your tail & smiling wide They say you’re just a dog You’re so much more A privilege & never…