Everything I ever thought of when I thought of primary progressive multiple sclerosis is coming true.  The stiffness.  The not being able to walk very well or very far.  The inability to stand for any length of time.  The aching legs and leg cramps.  The stiff hands that make it…

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PPMS: Thoughts

Arms are burning  Legs are weak  Some days living feels like swimming upstream  Wish it were a dream Feels like I’m gonna drown Trying not to let it get me down Doing my best to smile and hold my head up high Sigh Life changes so quickly  One minute you’re…

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Prednisone: Love-Hate

Oh Prednisone how I love to hate you You give me energy  Yet steal my sleep  Helping with fatigue and pain I’m so happy I could weep A double edged sword  Turning me into a hungry foodie Eating everything in sight  While making me moody MS eats nerves You eat…

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My MS

When I was initially diagnosed with MS I was diagnosed with Relapse Remitting Multiple Sclerosis.  Relapse Remitting Multiple Sclerosis aka RRMS is the most common form of MS.  One year later, my diagnosis unsurprisingly changed to PRMS.  Progressive Relapsing MS or PPMS “with activity”. People who have RRMS have unpredictable…

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Exercising & Chronic Illness: 7 Things To Know

1)  Consult with a Physical Therapist when possible. Consulting with a physical therapist was the best thing I ever did.  A Physical Therapist who has knowledge of your particular illness (in my case progressive multiple sclerosis) and experience treating it can get you started. Exercises to improve my walking, balance,…

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My Dog Is A Better Patient Than Me

1)  He hates taking his medication. So do I. 2)  He keeps going when he shouldn’t.  So do I.  3)  He’s a great patient who never complains. So am I.  Oh, who am I kidding!  However, in my defense, no one tells you when you’re diagnosed with primary progressive multiple…

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