Everything I ever thought of when I thought of primary progressive multiple sclerosis is coming true.  The stiffness.  The not being able to walk very well or very far.  The inability to stand for any length of time.  The aching legs and leg cramps.  The stiff hands that make it…

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What is PRMS?

Nine years after my first brain mri that showed “nonspecific demylenation” and three years after official diagnosis, I want to tell you what PRMS is not (to me personally).  PRMS is not curable. There are no remissions. It’s not well known or commonly heard of.  Odds are it’s not your friend’s ms. It’s…

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My MS

When I was initially diagnosed with MS I was diagnosed with Relapse Remitting Multiple Sclerosis.  Relapse Remitting Multiple Sclerosis aka RRMS is the most common form of MS.  One year later, my diagnosis unsurprisingly changed to PRMS.  Progressive Relapsing MS or PPMS “with activity”. People who have RRMS have unpredictable…

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