What is PRMS?

Nine years after my first brain mri that showed “nonspecific demylenation” and three years after official diagnosis, I want to tell you what PRMS is not (to me personally).  PRMS is not curable. There are no remissions. It’s not well known or commonly heard of.  Odds are it’s not your friend’s ms. It’s…

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Allergic Reactions & Antibiotics

Our immune system works around the clock to fight and protect us from bacteria and germs.  When our immune system becomes oversensitive we can develop an allergic reaction that can be very serious.  We can develop an allergy to an antibiotic or food that we have taken or eaten before…

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PPMS: Thoughts

Arms are burning  Legs are weak  Some days living feels like swimming upstream  Wish it were a dream Feels like I’m gonna drown Trying not to let it get me down Doing my best to smile and hold my head up high Sigh Life changes so quickly  One minute you’re…

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My MS

When I was initially diagnosed with MS I was diagnosed with Relapse Remitting Multiple Sclerosis.  Relapse Remitting Multiple Sclerosis aka RRMS is the most common form of MS.  One year later, my diagnosis unsurprisingly changed to PRMS.  Progressive Relapsing MS or PPMS “with activity”. People who have RRMS have unpredictable…

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Exercising & Chronic Illness: 7 Things To Know

1)  Consult with a Physical Therapist when possible. Consulting with a physical therapist was the best thing I ever did.  A Physical Therapist who has knowledge of your particular illness (in my case progressive multiple sclerosis) and experience treating it can get you started. Exercises to improve my walking, balance,…

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My Dog Is A Better Patient Than Me

1)  He hates taking his medication. So do I. 2)  He keeps going when he shouldn’t.  So do I.  3)  He’s a great patient who never complains. So am I.  Oh, who am I kidding!  However, in my defense, no one tells you when you’re diagnosed with primary progressive multiple…

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